I think all of you who follow my blog already know about Lillian and her amazing mom, Sarah. If not, read up on her journey with Prader-Willi syndrom and a world that can be so different than the one we we live in with our "normal" struggles and fears and triumphs and the grace with which this family has faced such a scary diagnosis:
http://fallingforbaby.blogspot.com/
Some amazing girls are trying to do something to make life better for little Lillian and others with PWS. Please consider following their journey and contributing to their efforts:
http://www.runningforlillian.blogspot.com/
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